Fetal genetic tests are now routinely used to diagnose diseases as well known as cystic fibrosis and as obscure as fragile X, a form of mental retardation. High-resolution sonograms can detect life-threatening defects like brain cysts as well as treatable conditions like a small hole in the heart or a cleft palate sooner and more reliably than previous generations of the technology. And the risk of Down syndrome, one of the most common birth defects, can be assessed in the first trimester rather than waiting for a second-trimester blood test or amniocentesis...Yeah, well, so what. People want beautiful kids, and I'm betting there are going to be more and more efforts to get them.
Against the backdrop of a bitter national divide on abortion, couples are devising their own very private scales for weighing whether to continue their pregnancies. Often, political or religious beliefs end up being put aside, trumped by personal feelings. And even many of those who have no doubts about their decision to terminate say the grief is lasting...
Whatever they choose, couples find themselves exposed to judgments from all sides. Several of those interviewed asked that personal details be withheld because they had let friends and family believe that their abortion was a miscarriage. Others say they have been surprised that even conservative parents, who never faced such decisions themselves, have counseled them to abort rather than face too hard a life.
Activists for the rights of the disabled say that a kind of grass-roots eugenics is evolving that will ultimately lead to greater intolerance of disabilities and less money for cures or treatments.
Sunday, June 20
In New Tests for Fetal Defects, Agonizing Choices for Parents By AMY HARMON:
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